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It is reported that the thesis section is available, to publish abstracts of postgraduate theses in the disciplinary field. Who submits your thesis, must present the title, abstract, key words (include Occupational Therapy), and a summary of 2 to 3 pages of your thesis. And `present it in Spanish, English and / or Portuguese.

Exploring occupational participation in children with epidermolisys bullosa integrated into the chilean educational system.

Authors

  • Javiera Aubert
  • Lorena Berenguer
  • María Jesús Cofré
  • Catalina Leyton
  • Alejandra González Escuela de Terapia Ocupacional, Universidad de Chile
  • Rodrigo Sepúlveda Universidad de Chile

Abstract

This study explores the occupational participation of children with Epydermolisys Bullosa (E.B.) dystrophic and junctional in the educational area, which because of their health condition, are considered as student with Special Educational Needs (SEN).

With the aim to know how satisfactory is the integration and whether it has the necessary support, the study carried out, through a qualitative and exploratory focus, on three selected cases with the established selection criteria. Through a pragmatic analysis of data obtained during the field work, the Short Child Occupational Self Assessment (S.C.O.P.E.) is used, from the Model of Human
Occupation (M.O.H.O.), some conclusions emerge, which are structured and based on the model announced.


The importance and relevance of studying this subject from Occupational Therapy is given by the pertinence of the intervention and contribution to E.B. in people who live this condition, even though it as a low incidence in general population from an epidemiological perspective, because they need a multidisciplinary and integral intervention to mitigate the impact caused by thedisease in all occupational areas.

Keywords:

Epidermolisys bullosa, special educational needs, occupational participation, model of human occupation, occupational therapy.

Author Biographies

Javiera Aubert

Terapeuta Ocupacional, Universidad de Chile.

Lorena Berenguer

Terapeuta Ocupacional, Universidad de Chile.

María Jesús Cofré

Terapeuta Ocupacional, Universidad de Chile.

Catalina Leyton

Terapeuta Ocupacional, Universidad de Chile.

Alejandra González, Escuela de Terapia Ocupacional, Universidad de Chile

Terapeuta Ocupacional, Universidad de Chile. Magister en Administración y Gestión en Salud, Universidad de los Andes.

Docente Escuela de Terapia Ocupacional, Universidad de Chile

Rodrigo Sepúlveda, Universidad de Chile

Antropólogo

Académico Escuela de Terapia Ocupacional, Univerisdad de Chile